Hello. Many people have questions about me, Joshua Burger. Here’s my story: I was born December 4, 1990. I have a condition called Ateleosteogenesis Syndrome Type III. There are only a handful of cases recorded and four or five survivors in the world.
When I was a 41/2-month-old fetus, ultrasound testing showed me to be “abnormal.” My parents were encouraged to abort me, as “he would not live anyway”.
Abortion was not the answer for them (or me!) But like many who discuss philosophically what is right and wrong, my parents never for a moment thought that they would ever face this decision in reality.
Two beliefs strengthened them. First, that life begins at conception and that it is not anyone’s prerogative to end it, however brief it is. Second, they believe that the quality of a life is not for anyone to judge, whether it is a mental or physical impairment. There are many instances of children and adults beating the odds, not only to survive, but also to thrive and contribute to society. They just couldn’t give up hope. “This fetus is going to die anyway,” said the experts. “You are going to suffer physically, emotionally, and financially much longer if you don’t act now. We’re only thinking of your best interests.”
It is true. There is a price to pay. I have survived two seizures, two surgeries, five hospitalizations, a choking, and respiratory arrest twice, helped only by my Dads rescue breathing for me. I am on constant oxygen and medications for life.
My parents say they have also survived the joy of my smile, watching me learn to roll and change direction with my feet, watching me learn to walk on my knees, and seeing me hear for the first time. They say I am funny and smart and make people smile. They have seen me grow and overcome so much that their best hopes are realized.
We all endure the stares and the questions because giving me my life was the right decision, then and now.
I am in middle school and doing well. I am confident and am very happy. I really enjoy making others laugh. Girls like me, too.
My parents proudly say they would not change me even if they could. They think that I am perfect just the way God made me. They also say that God smiled when He formed me and that He wrapped their blessing in disguise. Wow!
John 3:16. Look it up, read it, the answers are all there.
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